Developmental Disability Providers & Support: Youth to Adulthood
Disclaimer
Horizons to Hope provides resources for informational purposes only and does not endorse or recommend any listed provider or service. Users are encouraged to conduct their own research and due diligence before engaging with any resources referenced on this site. Horizons to Hope strives to provide accurate and reliable information; however, we cannot guarantee the completeness or validity of external content. We assume no responsibility for errors, omissions, or the services offered by linked providers.
Down Syndrome (Trisomy 21)
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Resources:
Bucks County Down Syndrome Interest Group (BCDSIG)
Local support group for families — peer support, events, resource & info sharing.
Phone: (215) 290-3118
Website: https://bcdsig.wordpress.comNational Down Syndrome Society (NDSS)
Information, advocacy, local support groups, guides for early intervention, and educational & healthcare resources.
https://ndss.org/National Institute of Child Health and Human Development (NICHD)
Research, health info, resource links for patients and families.
https://www.nichd.nih.gov/health/topics/downsyndromeMayo Clinic
Overviews of diagnosis & treatment. Helps with guidance on what to expect medically.
https://www.mayoclinic.org/diseases-conditions/down-syndromeChildren’s Hospital of Philadelphia (CHOP)
“Trisomy 21 Toolkit for Transitioning to Adult Medical Care” and broader resources.
https://www.chop.edu/caring-for-your-childDown Syndrome Diagnosis Network (DSDN)
National parent network that provides peer support, family connections, and advocacy.
https://www.dsdiagnosisnetwork.org/Bucks County Down Syndrome Interest Group
Focus: Community-based nonprofit organization that promotes inclusion, provides education and resources, and supports individuals with Down syndrome and their families through advocacy, social events, family connections, and community outreach in Bucks County, PA.
Location/Meeting Info: 295 Buck Road, Suite 203, Holland, PA 18966. Contact: 267-590-9321 or information@bcdsig.org.
Website: https://www.bcdsig.org/advocacy (advocacy resources and educational advocates) | https://www.bcdsig.org/socialevents (social events)The Gold Book
Focus: Free guide that helps Pennsylvania families understand and navigate services provided through the Office of Developmental Programs (ODP). Covers eligibility, applying for services and waivers, person-centered planning, choosing providers, individual rights, and long-term planning.
Location/Meeting Info: Available as a free download for Pennsylvania families.- EPDSC — Eastern PA Down Syndrome Center
Provides programs, resources, and family support for people with Down syndrome.
https://www.epdsc.net/
Rett Syndrome
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Resources:
The Medical Center at Woods (Bucks County)
Outpatient care specializes in people with disabilities.
Offers high-quality, compassionate outpatient services for a wide range of illnesses and injuries, including chronic disease management, acute care, women’s health, men’s health, vaccinations, blood work, X-rays, etc.
Focus on treating people with intellectual and developmental disabilities, autism, behavioral challenges, and those with medical complexities.
Staff trained to work with special needs patients, including nonverbal communication, sensory accommodations, and other supports.
Provides medical, dental, and behavioral health care specialized for this population.
Website: https://www.woods.org/
Bucks County Department of Behavioral Health / Developmental Programs (BH/DP)
Administers behavioral health, developmental, intellectual disability, autism, and mental health services for Bucks County residents.
Developmental Programs include Early Intervention, Intellectual Disabilities / Autism (ID/A) services.
Supports Coordination helps with finding, coordinating, and monitoring services.
Services range from companion care to 24-hour residential support, based on assessed need.
Also covers mental health services, managed care, crisis services, peer support, and case management.
Website: https://www.buckscounty.gov/601/Behavioral-Health-Developmental-Programs
Bucks County Intellectual Disabilities / Autism (ID/A) Services
Administered locally by Bucks County BH/DP under the Pennsylvania Office of Developmental Programs (ODP).
Eligibility includes intellectual disability, autism spectrum disorder, developmental disability (for children age 8 or younger), or children with medical complexities up to age 21.
Offers Supports Coordination to help individuals locate, coordinate, and monitor needed services.
Services are varied based on assessed needs: companion care, residential supports, etc.
Website: https://www.buckscounty.gov/643/Intellectual-DisabilitiesAutism-Servic
Children’s Hospital of Philadelphia (CHOP) – Rett Syndrome Clinic
Provides multidisciplinary clinical care for children with Rett syndrome or related conditions (e.g., FOXG1 syndrome, MECP2 duplication).
Services include:
• Diagnosis/genetic testing (if not yet established).
• Management of medical issues (seizures, nutrition, gastrointestinal, growth, tone/spasticity, sleep disturbances).
• Therapies: physical, occupational, speech (including augmentative/alternative communication).
• Rehabilitation and equipment needs (seating, mobility).
• Social work collaboration for resources and family support.Involved in research: Natural History of Rett Syndrome and Related Disorders study; observational and interventional trials; biomarker development; wearable technologies.
Links:
Clinic page: https://www.chop.edu/centers-programs/rett-syndrome-clinic
Preparing for your appointment: https://www.chop.edu/pages/preparing-your-rett-syndrome-clinic-appointment
Fragile X Syndrome
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Resources:
Children’s Hospital of Philadelphia (CHOP) Fragile X / Trinucleotide Repeats Clinic
CHOP’s Neuroscience Center includes a clinic for “Trinucleotide Repeats: Fragile X Syndrome.”
Provides evaluation, management, and treatment of children and adolescents with Fragile X Syndrome and related genetic disorders.
A developmental pediatrician, Amanda E. Bennett, MD, MPH, specializes in Fragile X syndrome and provides care for children from birth through age 18.
Services include medical evaluation, developmental assessment, and family support.
CHOP is a member of the Fragile X Clinical & Research Consortium (FXCRC), giving families access to research and guidance for transitioning to adult care.
Links:
CHOP Fragile X info: https://www.chop.edu/conditions-diseases/trinucleotide-repeats-fragile-x-syndrome
Amanda E. Bennett profile: https://www.chop.edu/doctors/bennett-amanda-e
Geisinger Fragile X Clinic — Autism & Developmental Medicine Institute (ADMI)
Offers a comprehensive package of developmental services for individuals with Fragile X and family support.
Multidisciplinary: medical, behavioral, genetic counseling, assessment services, speech-language pathology, psychology, special education, etc.
Leads or participates in genetic testing and is part of the Fragile X Clinical & Research Consortium.
Provides consultation to schools, agencies, and families both locally and at a distance.
Links:
Fragile X Clinic page: https://www.geisingerdevmed.org/fragile-x-clinic
ADMI Referral/Services: https://www.geisingerdevmed.org/refer-to-devmed
Elwyn – Training & Research / Related Services
Large nonprofit organization based in Pennsylvania, offering a broad continuum of services for people with intellectual, developmental, and behavioral health needs.
Key Services:
Early Learning Services (ELS) – Preschool early intervention services for children ages 3 up to school-age. Includes developmental evaluation, intake, individualized education planning, case management.
Educational Services – Customized educational programs in partnership with school districts and charter schools, supporting students to reach maximum potential.
Intellectual and Developmental Disabilities Services – Support for children and adults with a variety of developmental disabilities.
Behavioral Health Services (Children’s & Adult) – Mental/behavioral health supports across ages.
Crisis Services – For urgent intervention.
Links:
Main website: https://www.elwyn.org/
Early Learning Services: https://www.elwyn.org/services/early-learning-services
Educational Services: https://www.elwyn.org/services/educational-services
National Fragile X Foundation (NFXF) – Clinic Finder
Tool to locate Fragile X clinics (FXS / FXTAS / international). Filters by location, service, age, etc.
https://fragilex.org/resources/clinics/
Fragile X Clinics – FRAXA
Interactive map of medical facilities and clinics for Fragile X, helping families find care near them.
https://www.fraxa.org/fragile-x-clinics/
Prader-Willi Syndrome (PWS)
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Woods Services – Prader-Willi Syndrome Program
Provides residential, day, and community-based therapy services, including behavioral, physical, occupational, and speech therapy, tailored to children with Prader-Willi Syndrome in Pennsylvania, including Montgomery County.
Phone: 215-750-4000
https://woodsservicespa.org/prader-willi/
Community Coordinated Care (CCTC) – Montgomery County Services
Provides early intervention therapies, including physical, occupational, and speech therapy, tailored to children with developmental disabilities such as Prader-Willi Syndrome in Montgomery County.
Phone: 610-277-6363
https://www.cctckids.org/programs-services/in-montgomery-county/
Children’s Hospital of Philadelphia (CHOP) – Diagnostic and Research Growth Center
CHOP offers a dedicated Diagnostic and Research Growth Center providing multidisciplinary care, including endocrinology, nutrition, behavioral therapy, and clinical research for children with Prader-Willi Syndrome.
Phone: 215-590-8300
https://www.research.chop.edu/diagnostic-and-research-growth-center
Elwyn – Early Intervention and Therapy Services
Provides early intervention, physical, occupational, and speech therapy services for children with developmental disabilities in Pennsylvania, including Montgomery County.
Phone: 610-891-2000
https://www.elwyn.org/services/early-intervention/
Main Line Pediatric Therapy Center
Provides pediatric therapy services, including physical, occupational, and speech therapy, for children with developmental disabilities such as Prader-Willi Syndrome in Montgomery County and surrounding areas.
Phone: 610-527-7714
Prader-Willi Syndrome Association USA (PWSA USA)
Offers resources, family support, education, and advocacy for families affected by Prader Willi Syndrome. Provides connections to local support networks, including Pennsylvania chapters.
Phone: 941-312-0400
https://www.pwsausa.org/resources/
Foundation for Prader-Willi Research (FPWR)
Provides extensive resources, family support groups, and advocacy for Prader-Willi Syndrome worldwide, including guidance for Pennsylvania families.
Phone: 818-347-4674
https://www.fpwr.org/prader-willi-syndrome-resources
PWSA (Prader-Willi Syndrome Association) – Pennsylvania Chapter
Provides peer support, education, and advocacy for families affected by Prader-Willi Syndrome throughout Pennsylvania, including Montgomery County. Hosts meetings, social events, and shares resources.
https://www.pwsausa.org/join-now/chapters/pennsylvania/
The Arc of Montgomery County
Provides advocacy, family support, and community programs for individuals with intellectual and developmental disabilities, including Prader-Willi Syndrome, in Montgomery County.
Phone: 215-646-3510
https://www.arcofmontcopa.org/
Montgomery County How to Access Developmental Disability Services
Step-by-step guide to help families navigate and access services for developmental disabilities, including Prader-Willi Syndrome, in Montgomery County.
https://www.montgomerycountypa.gov/1332/How-to-Access-Developmental-Disability-S
Pennsylvania Department of Human Services – Early Intervention Services
Provides early intervention services, including therapy and developmental support, for children with developmental disabilities in Pennsylvania, including Montgomery County.
https://www.pa.gov/agencies/dhs/resources/early-learning-child-care/early-intervention services
Pennsylvania Department of Human Services – Office of Developmental Programs (ODP)
Oversees funding, service coordination, and advocacy for people with developmental disabilities across Pennsylvania, including Montgomery County.
Phone: 717-787-2700
Family Support of Southeastern Pennsylvania (FSSP)
Provides support, information, and advocacy services for families of children with disabilities, including Prader-Willi Syndrome, in Montgomery County and surrounding areas.
Phone: 610-447-0350
National Institute of Child Health and Human Development (NICHD) – Prader-Willi Syndrome Resources
Provides evidence-based health information, research updates, and resources for families and professionals working with individuals affected by Prader-Willi Syndrome.
https://www.nichd.nih.gov/health/topics/prader-willi/more_information/resources
Williams Syndrome
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Children’s Hospital of Philadelphia (CHOP) – Williams Syndrome Clinic
CHOP offers a dedicated Williams Syndrome Clinic providing comprehensive care, including cardiology, endocrinology, developmental pediatrics, and therapy services tailored to children with Williams Syndrome.
Phone: 215-590-8300
https://www.chop.edu/centers-programs/williams-syndrome-clinic
University of Pennsylvania (Penn Medicine) – Williams Syndrome Program
Provides comprehensive evaluation, diagnosis, and multidisciplinary care, including cardiology, genetics, and developmental therapy services tailored to children with Williams Syndrome.
Phone: 215-662-4000
https://www.med.upenn.edu/williams-syndrome/
Stanford Medicine Children’s Health – Connective Tissue Disorders Program
Provides multidisciplinary care for children with Williams Syndrome, including cardiology, genetics, and developmental therapy services. Serves patients from Pennsylvania, including Montgomery County.
Phone: 650-723-5941
https://treat.stanfordchildrens.org/connective-tissue-disorders/
Main Line Pediatric Therapy Center
Provides pediatric therapy services, including physical, occupational, and speech therapy, for children with developmental disabilities such as Williams Syndrome in Montgomery County and surrounding areas.
Phone: 610-527-7714
Easterseals Eastern Pennsylvania
Offers therapy and early intervention services for children with developmental disabilities including Williams Syndrome in Montgomery County and surrounding areas.
Phone: 610-437-5411
https://www.easterseals.com/epenn/
Elwyn – Early Intervention and Therapy Services
Provides early intervention, physical, occupational, and speech therapy services for children with developmental disabilities in Pennsylvania, including Montgomery County.
Phone: 610-891-2000
https://www.elwyn.org/services/early-intervention/
Community Coordinated Care (CCTC) – Montgomery County Services
Provides early intervention therapies, including physical, occupational, and speech therapy, tailored to children with developmental disabilities such as Williams Syndrome in Montgomery County.
Phone: 610-277-6363
https://www.cctckids.org/programs-services/in-montgomery-county/
Speech and Language Development Center (SLDC) – Philadelphia
Specializes in speech and language therapy for children with developmental disabilities, including Williams Syndrome, in Philadelphia and surrounding areas.
Phone: 215-248-1700
Williams Syndrome Association (WSA) – Tri-State Chapter
Provides peer support, education, and advocacy for families affected by Williams Syndrome in Pennsylvania, New Jersey, and Delaware, including Montgomery County. Hosts meetings, social events, and shares resources.
https://www.williams-syndrome.org/region/tri-state
Williams Syndrome Association – Available Aid and Assistance
Offers resources, family support, education, and advocacy for families affected by Williams Syndrome. Provides connections to local support networks, including Pennsylvania chapters.
https://www.williams-syndrome.org/available-aid-and-assistance
Montgomery County How to Access Developmental Disability Services
Step-by-step guide to help families navigate and access services for developmental disabilities, including Williams Syndrome, in Montgomery County.
https://www.montgomerycountypa.gov/1332/How-to-Access-Developmental-Disability-S
Montgomery County Early Intervention Services
Provides early intervention services, including therapy and developmental support, for children with developmental disabilities in Montgomery County.
https://www.montgomerycountypa.gov/745/Early-Intervention
Pennsylvania Early Intervention Providers
Provides early intervention services, including therapy and developmental support, for children with developmental disabilities in Pennsylvania, including Montgomery County.
Delaware County Memorial Hospital (DCMH) – Community Resources
Provides information and referrals to community resources, including developmental disability services, for families in Delaware County and surrounding areas, including Montgomery County.
Phone: 610-359-2200
https://decmc.org/community-resources/
The Arc of Montgomery County
Provides advocacy, family support, and community programs for individuals with intellectual and developmental disabilities, including Williams Syndrome, in Montgomery County.
Phone: 215-646-3510
Autism Spectrum Disorder (ASD)
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Cerebral Palsy with Intellectual Impairment
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Fetal Alcohol Spectrum Disorders (FASD); Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure
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Angelman Syndrome
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ASF Clinic at Children’s Hospital of Philadelphia (CHOP)
Appointments and contact information for CHOP’s Angelman Syndrome Foundation Clinic.
https://angelman.org/asf-clinics/childrens-hospital-of-philadelphia/
CHOP Specialty Care & Surgery Center, Bucks County (Chalfont)
Local access point for families in Bucks County to connect with CHOP’s Angelman services.
https://www.chop.edu/locations/specialty-care-surgery-center-bucks-county
Angelman Syndrome Foundation (ASF) – Resources Hub
Provides comprehensive resources, educational materials, research updates, and community support.
https://angelman.org/resources/
ASF Clinic Network
National and international listing of ASF-affiliated clinics specializing in Angelman Syndrome care.
https://angelman.org/asf-clinics/
Foundation for Angelman Syndrome Therapeutics (FAST)
Main organization funding research and treatments for Angelman Syndrome.
Main Site:
https://cureangelman.org/
Caregiver Resources:
https://cureangelman.org/resources/
ASF Adult and Transition Resources
Guidance for families supporting adolescents and adults with Angelman Syndrome, covering transitions to adulthood and long-term planning.
https://angelman.org/asgrowsup/
Stepping Into AAC – ASF / PrAACtical AAC Toolkit
A 20-week toolkit for families to support communication through augmentative and alternative communication (AAC).
PrAACtical AAC Page:
https://praacticalaac.org/stepping-into-aac-home/
ASF Page:
https://angelman.org/resources/stepping-into-aac/
FAST – Speech Therapy and AAC Overview
Educational resources for families on speech therapy and AAC specific to Angelman Syndrome.
https://cureangelman.org/speech-therapy-angelman-syndrome
Geisinger Dup15q and Angelman Syndrome Clinic
Provides comprehensive evaluations, therapy, and support services for individuals with Angelman Syndrome and Dup15q syndrome in Pennsylvania, including Montgomery County.
Phone: 570-214-6550
https://www.geisingerdevmed.org/dup15q-angelman-clinic
Ambler Counseling – Full Battery Evaluation
Offers psychological and developmental evaluations for children with Angelman Syndrome in Montgomery County and surrounding areas.
Phone: 267-282-8470
https://amblercounseling.com/full-battery-evaluation
Dragonfly Psychology – Child Assessment
Provides comprehensive psychological and developmental assessments for children with Angelman Syndrome in Pennsylvania.
Phone: 267-649-3047
https://dragonflypsych.com/clinical-services/services-for-children/child-assessment/
Psychology Today – Montgomery County Therapists for Testing and Evaluation
Lists local therapists and psychologists in Montgomery County who specialize in testing and evaluation for children with developmental disabilities, including Angelman Syndrome.
https://www.psychologytoday.com/us/therapists/pa/montgomery-county?category=testing-and-evaluation
My Child’s Therapy – Early Intervention
Offers early intervention services, including evaluations and therapy for children with Angelman Syndrome in Montgomery County and surrounding areas.
Phone: 215-620-3292
https://www.mychildstherapy.com/early-intervention-montgomery-county
Gentle Care Therapy – Early Intervention PA
Provides early intervention services, including evaluations and therapy for children with Angelman Syndrome in Pennsylvania.
Phone: 610-868-3400
https://gentlecaretherapy.com/early-intervention-pa/
Montgomery County Intermediate Unit (MCIU) – Early Intervention
Offers early intervention evaluations and therapy services for children with developmental delays, including Angelman Syndrome, in Montgomery County.
Phone: 610-630-4100
https://mciu.org/office-of-early-childhood-services/early-intervention/
Bellelite Health – Montgomery County
Provides pediatric therapy services, including physical therapy, occupational therapy, and speech therapy, for children with Angelman Syndrome in Montgomery County and surrounding areas.
Phone: 215-657-1440
https://www.bellelitehealth.com/montgomery-county
Children’s Hospital of Philadelphia (CHOP)
Offers comprehensive evaluations, therapy, and support services for children with Angelman Syndrome in the Philadelphia region.
Phone: 215-590-1666
https://www.chop.edu/
Main Line Pediatric Therapy
Provides speech therapy, occupational therapy, physical therapy, and early intervention services for children with Angelman Syndrome in Montgomery County and surrounding areas.
Phone: 610-527-7714
https://www.mainlinepediatrictherapy.com/
Elwyn – Early Intervention and Therapy Services
Offers early intervention evaluations, physical therapy, occupational therapy, and speech therapy for children with developmental delays, including Angelman Syndrome, in Pennsylvania, including Montgomery County.
Phone: 610-891-2000
https://www.elwyn.org/services/early-intervention/
Speech and Language Development Center (SLDC)
Specializes in speech and language therapy for children with Angelman Syndrome in Philadelphia and surrounding areas.
Phone: 215-248-1700
https://www.sldc.org/
TherapyWorks
Provides speech therapy, occupational therapy, physical therapy, and ABA therapy for children with Angelman Syndrome in Montgomery County and surrounding areas via in-person and telehealth services.
Phone: 877-778-6442
https://www.therapy-works.com/
Stars Behavioral Health Group (SBHG)
Offers behavioral therapy, evaluations, and support services for individuals with Angelman Syndrome in the Philadelphia area.
Phone: 215-515-1677
https://www.starsbehavioralhealthgroup.com/
The Center for Autism and Developmental Disabilities (CADD) – Virtua Health
Provides comprehensive therapy services, including speech therapy, occupational therapy, and physical therapy, for children with Angelman Syndrome in southern New Jersey and the Philadelphia region.
Phone: 856-247-8255
https://www.virtua.org/services/cadd
Achieva
Provides physical therapy, occupational therapy, speech therapy, and support services for individuals with Angelman Syndrome in Pennsylvania.
Phone: 412-995-5000
https://www.achievaonline.org/
Bancroft NeuroRehab – Pediatric Services
Offers physical therapy, occupational therapy, speech therapy, and specialized rehabilitation services for children with Angelman Syndrome in New Jersey and the Philadelphia area.
Phone: 844-236-2267
https://www.bancroft.org/neuro-rehab/pediatric-neuro-rehab/
The Therapy Group of Philadelphia
Provides physical therapy, occupational therapy, speech therapy, and early intervention services for children with Angelman Syndrome in the Philadelphia area.
Phone: 215-563-2000
https://www.therapygroupphilly.com/
Cerebral Palsy Association of Delaware Valley (CPADV)
Offers physical therapy, occupational therapy, speech therapy, and support services for individuals with Angelman Syndrome in the Philadelphia area.
Phone: 215-545-2184
https://www.cpadelval.org/
Community Health and Dental Care (CHDC) – Pediatric Services
Provides developmental screenings, therapy, and support services for children with Angelman Syndrome in Philadelphia and Montgomery County.
Phone: 215-238-5100
https://www.chdc.org/
Jewish Family and Children’s Service of Greater Philadelphia – Developmental Support
Offers therapy, counseling, and support services for children with Angelman Syndrome and their families in the Philadelphia area.
Phone: 215-576-0800
https://www.jfcspgh.org/developmental-support/
NeuroBehavioral Associates
Provides neuropsychological evaluations, therapy, and support services for individuals with Angelman Syndrome in the Philadelphia area.
Phone: 301-986-1900
https://www.neurobehavioral.com/
Abington Pediatric Therapy
Offers occupational therapy, physical therapy, speech therapy, and early intervention services for children with Angelman Syndrome in Montgomery County and surrounding areas.
Phone: 215-887-4500
https://www.abingtonhealth.org/pediatric-therapy
Children’s Integrated Center for Success (CICS)
Provides comprehensive evaluations, therapy, and support services for children with Angelman Syndrome in the Philadelphia area.
Phone: 215-707-0300
https://www.templehealth.org/locations/childrens-integrated-center-for-success
Devereux Advanced Behavioral Health Pennsylvania
Offers behavioral therapy, evaluations, and support services for individuals with Angelman Syndrome in the Philadelphia area.
Phone: 610-954-9600
https://www.devereux.org/site/SPageServer/?pagename=pa_adult_services
22q11.2 Deletion Syndrome (DiGeorge Syndrome / VCFS)
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CHOP 22q and You Center
A nationally recognized clinic at CHOP that provides comprehensive multidisciplinary care for children with 22q11.2 Deletion Syndrome.
https://www.chop.edu/centers-programs/22q-and-you-center
CHOP Patient Information – 22q11.2 Deletion & Duplication Syndromes
Educational overview and care information for families.
https://www.chop.edu/conditions-diseases/22q112-deletion-and-duplication-syndromes
CHOP Specialty Care & Surgery Center, Bucks County (Chalfont)
Local access point for families in Bucks County to connect with CHOP’s 22q services.
https://www.chop.edu/locations/specialty-care-surgery-center-bucks-county
International 22q11.2 Foundation
Provides family resources, educational materials, and advocacy for those affected by 22q.
Main Site:
https://22q.org/
Resources for Families:
https://22q.org/resources/for-families/
22q Family Foundation
Supports families with education, peer groups, FAQs, and connection opportunities.
https://22qfamilyfoundation.org/
Geisinger Dup15q and Angelman Syndrome Clinic
Provides comprehensive evaluations, therapy, and support services for individuals with 22q11.2 Deletion Syndrome and related conditions in Pennsylvania, including Montgomery County.
Phone: 570-214-6550
https://www.geisingerdevmed.org/dup15q-angelman-clinic
Ambler Counseling – Full Battery Evaluation
Offers psychological and developmental evaluations for children with 22q11.2 Deletion Syndrome in Montgomery County and surrounding areas.
Phone: 267-282-8470
https://amblercounseling.com/full-battery-evaluation
Dragonfly Psychology – Child Assessment
Provides comprehensive psychological and developmental assessments for children with 22q11.2 Deletion Syndrome in Pennsylvania.
Phone: 267-649-3047
https://dragonflypsych.com/clinical-services/services-for-children/child-assessment/
Psychology Today – Montgomery County Therapists for Testing and Evaluation
Lists local therapists and psychologists in Montgomery County who specialize in testing and evaluation for children with developmental disabilities, including 22q11.2 Deletion Syndrome.
https://www.psychologytoday.com/us/therapists/pa/montgomery-county?category=testing-and-evaluation
My Child’s Therapy – Early Intervention
Offers early intervention services, including evaluations and therapy for children with 22q11.2 Deletion Syndrome in Montgomery County and surrounding areas.
Phone: 215-620-3292
https://www.mychildstherapy.com/early-intervention-montgomery-county
Gentle Care Therapy – Early Intervention PA
Provides early intervention services, including evaluations and therapy for children with 22q11.2 Deletion Syndrome in Pennsylvania.
Phone: 610-868-3400
https://gentlecaretherapy.com/early-intervention-pa/
Montgomery County Intermediate Unit (MCIU) – Early Intervention
Offers early intervention evaluations and therapy services for children with developmental delays, including 22q11.2 Deletion Syndrome, in Montgomery County.
Phone: 610-630-4100
https://mciu.org/office-of-early-childhood-services/early-intervention/
Bellelite Health – Montgomery County
Provides pediatric therapy services, including physical therapy, occupational therapy, and speech therapy, for children with 22q11.2 Deletion Syndrome in Montgomery County and surrounding areas.
Phone: 215-657-1440
https://www.bellelitehealth.com/montgomery-county
Children’s Hospital of Philadelphia (CHOP) – 22q and You Center
Offers comprehensive evaluations, therapy, and support services specifically for 22q11.2 Deletion Syndrome in the Philadelphia region.
Phone: 215-590-1666
https://www.chop.edu/centers-programs/22q-and-you-center
Main Line Pediatric Therapy
Provides speech therapy, occupational therapy, physical therapy, and early intervention services for children with 22q11.2 Deletion Syndrome in Montgomery County and surrounding areas.
Phone: 610-527-7714
https://www.mainlinepediatrictherapy.com/
Elwyn – Early Intervention and Therapy Services
Offers early intervention evaluations, physical therapy, occupational therapy, and speech therapy for children with 22q11.2 Deletion Syndrome in Pennsylvania, including Montgomery County.
Phone: 610-891-2000
https://www.elwyn.org/services/early-intervention/
Speech and Language Development Center (SLDC)
Specializes in speech and language therapy for children with 22q11.2 Deletion Syndrome in Philadelphia and surrounding areas.
Phone: 215-248-1700
https://www.sldc.org/
TherapyWorks
Provides speech therapy, occupational therapy, physical therapy, and ABA therapy for children with 22q11.2 Deletion Syndrome in Montgomery County and surrounding areas via in-person and telehealth services.
Phone: 877-778-6442
https://www.therapy-works.com/
Stars Behavioral Health Group (SBHG)
Offers behavioral therapy, evaluations, and support services for individuals with 22q11.2 Deletion Syndrome in the Philadelphia area.
Phone: 215-515-1677
https://www.starsbehavioralhealthgroup.com/
The Center for Autism and Developmental Disabilities (CADD) – Virtua Health
Provides comprehensive therapy services, including speech therapy, occupational therapy, and physical therapy, for children with 22q11.2 Deletion Syndrome in southern New Jersey and the Philadelphia region.
Phone: 856-247-8255
https://www.virtua.org/services/cadd
Achieva
Provides physical therapy, occupational therapy, speech therapy, and support services for individuals with 22q11.2 Deletion Syndrome in Pennsylvania.
Phone: 412-995-5000
https://www.achievaonline.org/
Bancroft NeuroRehab – Pediatric Services
Offers physical therapy, occupational therapy, speech therapy, and specialized rehabilitation services for children with 22q11.2 Deletion Syndrome in New Jersey and the Philadelphia area.
Phone: 844-236-2267
https://www.bancroft.org/neuro-rehab/pediatric-neuro-rehab/
The Therapy Group of Philadelphia
Provides physical therapy, occupational therapy, speech therapy, and early intervention services for children with 22q11.2 Deletion Syndrome in the Philadelphia area.
Phone: 215-563-2000
https://www.therapygroupphilly.com/
Community Health and Dental Care (CHDC) – Pediatric Services
Provides developmental screenings, therapy, and support services for children with 22q11.2 Deletion Syndrome in Philadelphia and Montgomery County.
Phone: 215-238-5100
https://www.chdc.org/
Jewish Family and Children’s Service of Greater Philadelphia – Developmental Support
Offers therapy, counseling, and support services for children with 22q11.2 Deletion Syndrome and their families in the Philadelphia area.
Phone: 215-576-0800
https://www.jfcspgh.org/developmental-support/
NeuroBehavioral Associates
Provides neuropsychological evaluations, therapy, and support services for individuals with 22q11.2 Deletion Syndrome in the Philadelphia area.
Phone: 301-986-1900
https://www.neurobehavioral.com/
Abington Pediatric Therapy
Offers occupational therapy, physical therapy, speech therapy, and early intervention services for children with 22q11.2 Deletion Syndrome in Montgomery County and surrounding areas.
Phone: 215-887-4500
https://www.abingtonhealth.org/pediatric-therapy
Children’s Integrated Center for Success (CICS)
Provides comprehensive evaluations, therapy, and support services for children with 22q11.2 Deletion Syndrome in the Philadelphia area.
Phone: 215-707-0300
https://www.templehealth.org/locations/childrens-integrated-center-for-success
Devereux Advanced Behavioral Health Pennsylvania
Offers behavioral therapy, evaluations, and support services for individuals with 22q11.2 Deletion Syndrome in the Philadelphia area.
Phone: 610-954-9600
https://www.devereux.org/site/SPageServer/?pagename=pa_adult_services
Tuberous Sclerosis Complex (TSC)
Click to Learn More
Developmental Disability Family Support Organizations
Click to Learn More
Bucks County Intermediate Unit #22
Provides educational, special education, early intervention, and student support services to children and families throughout Bucks County. Offers parent resources, transition services, autism support, behavioral health coordination, and educational programming for students with diverse learning needs.
Address: 705 N. Shady Retreat Road, Doylestown, PA 18901
Phone: (215) 348-2940
Contact Email: communications@bucksiu.org
Website: Bucks County IU
Bucks County Human Services Department (The Hub)
A centralized “one-stop” access point connecting Bucks County residents to mental health, developmental, housing, food, employment, veteran, and family support services. The Hub assists individuals and families in navigating county human service systems and community resources.
Address: 55 E. Court Street, Doylestown, PA 18901
Phone: (215) 348-6201
Contact Email: thehub@buckscounty.org
Website: Bucks Human Services Connect Hub
PA Navigate
A statewide online platform that helps families, caregivers, and professionals locate health, behavioral health, educational, disability, and community support services across Pennsylvania. Includes searchable resource databases and referral assistance.
Address: Statewide Pennsylvania resource network
Phone: 2-1-1 Pennsylvania HelpLine
Contact Email: support@pa-navigate.org
Website: PA Navigate
Parent to Parent of Pennsylvania
Provides peer mentoring and emotional support for families of children and adults with disabilities or special healthcare needs. Connects parents with trained volunteer mentor families who have similar life experiences.
Address: 6340 Flank Drive, Harrisburg, PA 17112
Phone: (888) 727-2706
Contact Email: parenttoparent@visionforequality.org
Website: Parent to Parent of PA
Down Syndrome (Trisomy 21)
Click to Learn More
Resources:
Rett Syndrome
Click to Learn More
Resources:
Fragile X Syndrome
Click to Learn More
Resources:
Prader-Willi Syndrome (PWS)
Click to Learn More
Williams Syndrome
Click to Learn More
Autism Spectrum Disorder (ASD)
Click to Learn More
Evaluation, Therapy & Treatment
ABA Centers of Pennsylvania
Provides applied behavior analysis (ABA) therapy and diagnostic evaluations for children with Autism Spectrum Disorder (ASD).
Phone: 215-221-9777
Website: https://www.abacenterspa.com/
As You Are
Provides comprehensive autism evaluations and diagnostic services for children in the Philadelphia region, including Montgomery County.
Phone: 267-888-5888
Website: https://asyouare.com/schedule-evaluation/
The Center for Autism
Provides autism diagnostic evaluations, therapy services, and family support programs for children with ASD.
Phone: 215-483-3000
Website: https://www.thecenterforautism.org/evaluations/
Autism Diagnostics
Provides autism spectrum disorder evaluations and diagnostic assessments for children and adolescents.
Phone: 877-771-2333
Website: https://www.autismdiagnostics.com/
Gold Star Rehab
Provides ABA therapy, speech therapy, and occupational therapy for children with Autism Spectrum Disorder.
Phone: 215-657-7777
Website: https://www.goldstarrehab.com/asd-services/montgomery-county
HH Family Services
Provides in-home ABA therapy, behavioral support, and parent training for families of children with autism.
Phone: 484-548-9090
Website: https://hhfamily.com/locations/pa/montgomery-county/
Beyond Autism Services
Provides ABA therapy, social skills groups, and individualized support for children with Autism Spectrum Disorder.
Phone: 484-754-5174
Website: https://beyondautismservices.com/autism-therapist-near-montgomery-county-pa/
Ambler Counseling
Provides autism assessments, counseling, and family support services.
Phone: 267-282-8470
Website: https://amblercounseling.com/autism-assessment-montgomery-county-pa
Indian Creek Foundation
Provides social skills groups, recreational programs, and support services for children and adults with Autism Spectrum Disorder.
Phone: 215-885-1088
Website: https://indcreek.org/
Elwyn – Autism Services
Provides autism evaluations, ABA therapy, speech therapy, occupational therapy, and early intervention services.
Phone: 610-891-2000
Website: https://www.elwyn.org/services/autism/
CARD Philadelphia (Center for Autism and Related Disorders)
Provides evidence-based ABA therapy, social skills groups, and autism diagnostic evaluations.
Phone: 215-884-2333
Website: https://centerforautism.com/locations/philadelphia-pa/
Autism Learning Partners
Provides ABA therapy, speech therapy, occupational therapy, and social skills groups for children with Autism Spectrum Disorder.
Phone: 888-867-7822
Website: https://autismlearningpartners.com/locations/pennsylvania/philadelphia/
Devereux Advanced Behavioral Health Pennsylvania
Provides autism evaluations, therapy services, and family support programs for children with Autism Spectrum Disorder.
Phone: 610-954-9600
Website: https://www.devereux.org/site/PageServer?pagename=pa_services_autism
Children’s Hospital of Philadelphia (CHOP) – Autism Integrated Care Program
Provides multidisciplinary autism evaluations, therapy services, and family support for children with Autism Spectrum Disorder.
Phone: 215-590-7900
Website: https://www.chop.edu/conditions-diseases/autism-spectrum-disorder
Cognitive & Behavioral Consultants (CBC)
Provides autism evaluations, ABA therapy, and social skills groups for children with Autism Spectrum Disorder.
Phone: 215-886-1776
Website: https://cbc-psychology.com/autism/
Easterseals Eastern Pennsylvania
Provides early intervention services, speech therapy, occupational therapy, and support programs for children with Autism Spectrum Disorder.
Phone: 610-289-0500
Website: https://www.easterseals.com/epenn/
Speech and Language Development Center (SLDC)
Provides speech and language therapy for children with Autism Spectrum Disorder.
Phone: 215-248-1700
Website: https://www.sldc.org/
Main Line Pediatric Therapy
Provides speech therapy, occupational therapy, and ABA therapy for children with Autism Spectrum Disorder.
Phone: 610-527-7714
Website: https://www.mainlinepediatrictherapy.com/
KidsPeace Autism Spectrum Disorder Services
Provides autism evaluations, therapy, and family support services for children with Autism Spectrum Disorder.
Phone: 800-252-1758
Website: https://www.kidspeace.org/services/autism-spectrum-disorder/
Stars Behavioral Health Group (SBHG)
Provides ABA therapy, autism evaluations, and support services for children with Autism Spectrum Disorder.
Phone: 215-515-1677
Website: https://www.starsbehavioralhealthgroup.com/
TherapyWorks
Provides speech therapy, occupational therapy, ABA therapy, and telehealth services for children with Autism Spectrum Disorder.
Phone: 877-778-6442
Website: https://www.therapy-works.com/
Support Groups & Community Organizations
PA Autism Services (PAS)
Provides support groups, educational resources, and advocacy for individuals with Autism Spectrum Disorder and their families throughout Pennsylvania, including Montgomery County.
Website: https://paautism.org/support-groups/
Philly Autism Project
Provides community-based support, education, and resources for individuals with Autism Spectrum Disorder and their families in Philadelphia and Montgomery County.
Website: https://www.phillyautismproject.org/olney-oak-lane/
Access Services
Provides community-based support, advocacy, and resources for individuals with Autism Spectrum Disorder and their families.
Phone: 800-589-6434
Website: https://www.accessservices.org/where-we-serve/montgomery-county-pa/
Psychology Today – Montgomery County Autism Groups
Provides a directory of local autism support groups, counseling groups, and family resources in Montgomery County.
Website: https://www.psychologytoday.com/us/groups/pa/montgomery-county?category=autism
Autism Society of America – Southeastern Pennsylvania Chapter
Provides support groups, advocacy, educational resources, and community programs for individuals with Autism Spectrum Disorder and their families.
Phone: 215-230-5390
Website: https://www.autism-society.org/chapter/autism-society-southeastern-pennsylvania/
The Arc of Montgomery County
Provides advocacy, family support, community programs, and resources for individuals with Autism Spectrum Disorder and other intellectual and developmental disabilities.
Phone: 215-646-3500
Website: https://www.arcofmontcopa.org/
The Arc of Chester County
Provides advocacy, support groups, family resources, and community programs for individuals with Autism Spectrum Disorder and other developmental disabilities.
Phone: 610-696-8090
Website: https://www.arcofchester.org/
Jewish Family and Children’s Service of Greater Philadelphia – Autism Support
Provides support groups, counseling, and family resources for individuals with Autism Spectrum Disorder and their caregivers.
Phone: 215-576-0800
Website: https://www.jfcspgh.org/autism-support/
Parent to Parent of Pennsylvania
Provides one-to-one peer support, family mentoring, and resources for parents and caregivers of children with Autism Spectrum Disorder.
Phone: 800-986-4550
Website: https://www.parenttoparent.org/
Autism Speaks – Philadelphia Walk & Resource Fair
Provides annual community events, educational resources, and opportunities for families to connect with autism service providers and support organizations.
Website: https://www.autismspeaks.org/walk/philadelphia-pa
Pathway School
Provides educational programming, social skills groups, and transition services for children and adolescents with Autism Spectrum Disorder.
Phone: 610-277-0660
Website: https://www.pathwayschool.org/
Camphill Village Kimberton Hills
Provides residential, day, vocational, and community support programs for children and adults with Autism Spectrum Disorder and other developmental disabilities.
Phone: 610-935-0338
Website: https://www.camphillkimberton.org/
Information & Advocacy
Montgomery County Intellectual Disabilities/Autism (ID/A) Services
Provides service coordination, waiver program enrollment, case management, and connections to community resources for individuals with intellectual disabilities and Autism Spectrum Disorder.
Phone: 610-278-3642
Website: https://www.montgomerycountypa.gov/1297/Intellectual-Disabilities-Autism
Magellan of Pennsylvania – Autism Resources
Provides autism information, behavioral health resources, educational materials, and connections to services for individuals with Autism Spectrum Disorder and their families.
Website: https://www.magellanofpa.com
Montgomery County Intermediate Unit (MCIU) – Intensive Autistic Support Services
Provides specialized educational programs, autism support services, and transition planning for students with Autism Spectrum Disorder.
Phone: 610-755-9300
Website: https://www.mciu.org
Pennsylvania Department of Human Services – Autism Services
Provides information about autism programs, waiver services, funding opportunities, and statewide resources for individuals with Autism Spectrum Disorder.
Phone: 717-787-6443
Website: https://www.dhs.pa.gov
CAP4Kids Philadelphia – Autism Resources
Provides a directory of autism evaluations, therapy providers, educational services, support groups, and family resources throughout the Philadelphia region.
Website: https://cap4kids.org/philadelphia/parent-handouts/special-needs/autism/
AACES (Achieving, Connecting, and Educating for Success)
Provides educational advocacy, parent training, consultation, and resources for families of children with Autism Spectrum Disorder and other disabilities.
Website: https://www.aaces4kids.org
Montgomery County Early Intervention Program
Provides developmental evaluations, therapy services, and early intervention supports for eligible infants and young children with developmental delays and Autism Spectrum Disorder.
Phone: 610-278-3701
Website: https://www.montgomerycountypa.gov/745/Early-Intervention
Pennsylvania Autism Insurance Project
Provides information about insurance coverage, advocacy, and guidance for accessing autism-related services and benefits in Pennsylvania.
Website: https://paautism.org/resource/pennsylvania-autism-insurance-project/
Autism Connection of Pennsylvania
Provides educational resources, family support, advocacy, training, and statewide programs for individuals with Autism Spectrum Disorder and their families.
Phone: 800-692-7288
Website: https://autismofpa.org
PEAL Center
Provides parent education, advocacy, leadership development, and resources for families of children with disabilities, including Autism Spectrum Disorder.
Phone: 866-950-1040
Website: https://www.pealcenter.org
Education Law Center – Pennsylvania
Provides legal information, educational advocacy, and resources to help families secure appropriate educational services for students with disabilities.
Phone: 215-238-6970
Website: https://www.elc-pa.org
Parent Education & Advocacy Leadership (PEAL) Center
Provides family support, educational advocacy, training, and resources to help parents navigate special education and disability services.
Phone: 866-950-1040
Website: https://www.pealcenter.org
Autism Society of America
Provides national advocacy, educational resources, support programs, and information for individuals with Autism Spectrum Disorder and their families.
Phone: 800-328-8476
Website: https://autismsociety.org
Cerebral Palsy with Intellectual Impairment
Click to Learn More
Fetal Alcohol Spectrum Disorders (FASD); Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure
Click to Learn More
Evaluation, Therapy & Treatment
Support Groups & Community Organizations
FASD United – Family Navigator
Provides a directory of support groups, educational resources, advocacy, and family navigation services for individuals and families affected by Fetal Alcohol Spectrum Disorder (FASD).
Website: https://fasdunited.org/family-navigator/
FASD Collaborative
Provides support groups, educational resources, training, and community connections for individuals with FASD and their families.
Website: https://www.fasdcollaborative.com/support
PA Families Inc. – FASD Support
Provides support groups, educational resources, advocacy, and family support services for individuals affected by FASD throughout Pennsylvania.
Phone: 717-232-7500
Website: https://www.pafamiliesinc.org/resources
Pennsylvania Department of Human Services – FASD Support Groups
Provides a directory of support groups, family resources, and community organizations serving individuals with FASD throughout Pennsylvania.
Website: https://www.pa.gov/agencies/dhs/resources/adopt-pa-kids/support-groups
Family Support Line (Montgomery County)
Provides support groups, advocacy, educational resources, and family assistance for individuals with disabilities, including FASD.
Phone: 800-464-2903
Website: https://fsmontco.org/
Behavioral Health Safe Harbor
Provides support groups, prevention education, advocacy, and community resources for individuals with FASD and their families.
Phone: 800-688-8270
Website: https://www.bcdac.org/prevention/current_programs/fasd.php
Society for Developmental and Behavioral Pediatrics (SDBP) – FASD Special Interest Group
Provides educational resources, professional training, and information for families and professionals supporting individuals with FASD.
Website: https://sdbp.org/sig/fasd-special-interest-group/
The Arc of Montgomery County – FASD Support Group
Provides support groups, advocacy, educational resources, and family support for individuals with FASD and their families.
Phone: 215-646-3500
Website: https://www.arcofmontcopa.org/
The Arc of Chester County – FASD Support Group
Provides support groups, advocacy, family resources, and community programs for individuals with FASD and their families.
Phone: 610-696-8090
Website: https://www.arcofchester.org/
Parent to Parent of Pennsylvania
Provides one-to-one peer support, family mentoring, educational resources, and connections for families of children with FASD and other developmental disabilities.
Phone: 800-986-4550
Website: https://www.parenttoparent.org/
Pathway School – FASD Support
Provides educational programming, social skills development, and transition services for children and adolescents with FASD.
Phone: 610-277-0660
Website: https://www.pathwayschool.org/
Camphill Village Kimberton Hills
Provides residential, vocational, day, and community support programs for individuals with FASD and other developmental disabilities.
Phone: 610-935-0338
Website: https://www.camphillkimberton.org/
Information & Advocacy
Pennsylvania Department of Human Services – Fetal Alcohol Spectrum Disorder (FASD) Task Force
Provides information about FASD, statewide initiatives, educational resources, and advocacy efforts to improve awareness, prevention, and services throughout Pennsylvania.
Website: https://www.pa.gov/agencies/dhs/resources/mental-health-substance-use-disorder/fetal-alcohol-spectrum-disorder/fasd-task-force
Pennsylvania Department of Human Services – FASD Resources
Provides a statewide directory of FASD treatment programs, educational materials, support services, and advocacy resources for individuals and families.
Website: https://www.pa.gov/agencies/dhs/resources/mental-he
Philadelphia Department of Public Health – FASD Program
Provides education, prevention resources, community information, and support services for individuals and families affected by FASD in the Philadelphia area.
Phone: 215-685-5488
Website: https://www.phila.gov/departments/department-of-public-health/
Philadelphia Fetal Alcohol Spectrum Disorder (FASD) Task Force
Provides advocacy, educational resources, community awareness initiatives, and support for individuals and families affected by FASD in the Philadelphia region.
Website: https://www.phila.gov/documents/fasd-task-force/
Angelman Syndrome
Click to Learn More
Geisinger Dup15q and Angelman Syndrome Clinic
Provides comprehensive evaluations, therapy, and multidisciplinary care for individuals with Angelman Syndrome and Dup15q syndrome throughout Pennsylvania.
Phone: 570-214-6550
Website: https://www.geisingerdevmed.org/dup15q-angelman-clinic
Ambler Counseling – Full Battery Evaluation
Provides comprehensive psychological and developmental evaluations for children with Angelman Syndrome.
Phone: 267-282-8470
Website: https://amblercounseling.com/full-battery-evaluation
Dragonfly Psychology – Child Assessment
Provides psychological and developmental assessments for children with Angelman Syndrome and other developmental disabilities.
Phone: 267-649-3047
Website: https://dragonflypsych.com/clinical-services/services-for-children/child-assessment/
Psychology Today – Montgomery County Therapists for Testing and Evaluation
Provides a directory of psychologists and therapists specializing in developmental evaluations and testing for children with developmental disabilities, including Angelman Syndrome.
Website: https://www.psychologytoday.com/us/therapists/pa/montgomery-county?category=testing-and-evaluation
My Child’s Therapy – Early Intervention
Provides early intervention evaluations, developmental therapy, and pediatric rehabilitation services for children with Angelman Syndrome.
Phone: 215-620-3292
Website: https://www.mychildstherapy.com/early-intervention-montgomery-county
Gentle Care Therapy – Early Intervention
Provides early intervention evaluations and therapy services for children with developmental disabilities, including Angelman Syndrome.
Phone: 610-868-3400
Website: https://gentlecaretherapy.com/early-intervention-pa/
Montgomery County Intermediate Unit (MCIU) – Early Intervention
Provides developmental evaluations, early intervention services, and therapy for children with developmental delays, including Angelman Syndrome.
Phone: 610-630-4100
Website: https://mciu.org/office-of-early-childhood-services/early-intervention/
Bellelite Health – Montgomery County
Provides pediatric physical therapy, occupational therapy, and speech therapy for children with Angelman Syndrome.
Phone: 215-657-1440
Website: https://www.bellelitehealth.com/montgomery-county
Children’s Hospital of Philadelphia (CHOP)
Provides comprehensive evaluations, multidisciplinary care, therapy services, and ongoing medical support for children with Angelman Syndrome.
Phone: 215-590-1666
Website: https://www.chop.edu/
Main Line Pediatric Therapy
Provides speech therapy, occupational therapy, physical therapy, and early intervention services for children with Angelman Syndrome.
Phone: 610-527-7714
Website: https://www.mainlinepediatrictherapy.com/
Elwyn – Early Intervention and Therapy Services
Provides developmental evaluations, physical therapy, occupational therapy, speech therapy, and early intervention services for children with developmental disabilities, including Angelman Syndrome.
Phone: 610-891-2000
Website: https://www.elwyn.org/services/early-intervention/
Speech and Language Development Center (SLDC)
Provides speech and language therapy services for children with Angelman Syndrome and other developmental disabilities.
Phone: 215-248-1700
Website: https://www.sldc.org/
TherapyWorks
Provides speech therapy, occupational therapy, physical therapy, ABA therapy, and telehealth services for children with Angelman Syndrome.
Phone: 877-778-6442
Website: https://www.therapy-works.com/
Stars Behavioral Health Group (SBHG)
Provides behavioral therapy, evaluations, counseling, and supportive services for individuals with Angelman Syndrome.
Phone: 215-515-1677
Website: https://www.starsbehavioralhealthgroup.com/
The Center for Autism and Developmental Disabilities (CADD) – Virtua Health
Provides speech therapy, occupational therapy, physical therapy, and multidisciplinary developmental services for children with Angelman Syndrome.
Phone: 856-247-8255
Website: https://www.virtua.org/services/cadd
Achieva
Provides physical therapy, occupational therapy, speech therapy, and supportive services for individuals with Angelman Syndrome and other developmental disabilities.
Phone: 412-995-5000
Website: https://www.achievaonline.org/
Bancroft NeuroRehab – Pediatric Services
Provides pediatric rehabilitation, physical therapy, occupational therapy, speech therapy, and specialized developmental services for children with Angelman Syndrome.
Phone: 844-236-2267
Website: https://www.bancroft.org/neuro-rehab/pediatric-neuro-rehab/
The Therapy Group of Philadelphia
Provides physical therapy, occupational therapy, speech therapy, and early intervention services for children with Angelman Syndrome.
Phone: 215-563-2000
Website: https://www.therapygroupphilly.com/
Cerebral Palsy Association of Delaware Valley (CPADV)
Provides physical therapy, occupational therapy, speech therapy, and family support services for individuals with Angelman Syndrome and other developmental disabilities.
Phone: 215-545-2184
Website: https://www.cpadelval.org/
Community Health and Dental Care (CHDC) – Pediatric Services
Provides developmental screenings, therapy, and pediatric support services for children with Angelman Syndrome.
Phone: 215-238-5100
Website: https://www.chdc.org/
Jewish Family and Children’s Service of Greater Philadelphia – Developmental Support
Provides counseling, therapy, developmental services, and family support for children with Angelman Syndrome.
Phone: 215-576-0800
Website: https://www.jfcspgh.org/developmental-support/
NeuroBehavioral Associates
Provides neuropsychological evaluations, counseling, therapy, and behavioral support for individuals with Angelman Syndrome.
Phone: 301-986-1900
Website: https://www.neurobehavioral.com/
Abington Pediatric Therapy
Provides occupational therapy, physical therapy, speech therapy, and early intervention services for children with Angelman Syndrome.
Phone: 215-887-4500
Website: https://www.abingtonhealth.org/pediatric-therapy
Children’s Integrated Center for Success (CICS)
Provides comprehensive developmental evaluations, therapy services, and multidisciplinary support for children with Angelman Syndrome.
Phone: 215-707-0300
Website: https://www.templehealth.org/locations/childrens-integrated-center-for-success
Devereux Advanced Behavioral Health Pennsylvania
Provides behavioral therapy, evaluations, counseling, and supportive services for individuals with Angelman Syndrome.
Phone: 610-954-9600
Website: https://www.devereux.org/site/SPageServer/?pagename=pa_adult_services
Gaudenzia – Angelman Syndrome Support Services
Provides counseling, therapy, behavioral health treatment, and family support services for individuals with Angelman Syndrome.
Phone: 215-386-2600
Website: https://www.gaudenzia.org/
Holcomb Behavioral Health Systems
Provides counseling, behavioral health treatment, therapy, and family support for individuals with Angelman Syndrome.
Phone: 800-889-3931
Website: https://www.holcombbehavioralhealth.org/
Mazzitti & Sullivan EAP – Angelman Syndrome Counseling
Provides counseling and behavioral health services for individuals with Angelman Syndrome and their families.
Phone: 800-458-4357
Website: https://www.mazzittisullivan.com/
Pennsylvania Psychological Association – Angelman Syndrome Resources
Provides a statewide directory of psychologists and mental health professionals serving individuals with Angelman Syndrome.
Website: https://www.papsy.org/
Philadelphia Autism Project – Angelman Syndrome Resources
Provides educational resources, training, and family support related to Angelman Syndrome.
Website: https://www.philadelphiaautismproject.org/
Resources for Human Development (RHD) – Angelman Syndrome Services
Provides counseling, therapy, behavioral health treatment, and supportive services for individuals with Angelman Syndrome.
Phone: 215-735-1500
Website: https://www.rhd.org/
22q11.2 Deletion Syndrome (DiGeorge Syndrome / VCFS)
Click to Learn More
Tuberous Sclerosis Complex (TSC)
Click to Learn More
Children’s Hospital of Philadelphia (CHOP) – Tuberous Sclerosis Clinic
Provides comprehensive evaluations, multidisciplinary care, therapy, and ongoing support services for individuals with Tuberous Sclerosis Complex (TSC).
Phone: 215-590-1666
Website: https://www.chop.edu/centers-programs/tuberous-sclerosis-clinic
UPMC Children’s Hospital of Pittsburgh – Pediatric Tuberous Sclerosis
Provides comprehensive evaluations, multidisciplinary treatment, and long-term care for children with Tuberous Sclerosis Complex.
Phone: 412-692-5437
Website: https://childrens.uvahealth.com/conditions/pediatric-tuberous-sclerosis
Nemours Children’s Health – Tuberous Sclerosis Complex Program (Delaware Valley)
Provides specialized evaluations, multidisciplinary treatment, and ongoing support services for children with Tuberous Sclerosis Complex.
Phone: 215-456-9000
Website: https://www.nemours.org/services/tuberous-sclerosis-complex-program-delaware-valley.html
Montgomery County Early Intervention Programs
Provides early intervention evaluations, developmental services, and therapy for children with developmental delays, including Tuberous Sclerosis Complex.
Phone: 240-777-1300
Website: https://www.montgomerycountypa.gov/745/Early-Intervention
Gentle Care Therapy – Early Intervention PA
Provides early intervention evaluations, physical therapy, occupational therapy, speech therapy, and developmental services for children with Tuberous Sclerosis Complex.
Phone: 610-868-3400
Website: https://gentlecaretherapy.com/early-intervention-pa/
Speech and Language Development Center (SLDC)
Provides speech and language evaluations and therapy for children with Tuberous Sclerosis Complex and other developmental disabilities.
Phone: 215-248-1700
Website: https://www.sldc.org/
TherapyWorks
Provides speech therapy, occupational therapy, physical therapy, ABA therapy, and early intervention services through in-person and telehealth appointments.
Phone: 877-778-6442
Website: https://www.therapy-works.com/
Stars Behavioral Health Group (SBHG)
Provides behavioral therapy, mental health evaluations, and supportive services for individuals with Tuberous Sclerosis Complex.
Phone: 215-515-1677
Website: https://www.starsbehavioralhealthgroup.com/
The Center for Autism and Developmental Disabilities (CADD) – Virtua Health
Provides speech therapy, occupational therapy, physical therapy, developmental evaluations, and multidisciplinary care for children with Tuberous Sclerosis Complex.
Phone: 856-247-8255
Website: https://www.virtua.org/services/cadd
Achieva
Provides physical therapy, occupational therapy, speech therapy, family support, and services for individuals with developmental disabilities, including Tuberous Sclerosis Complex.
Phone: 412-995-5000
Website: https://www.achievaonline.org/
Bancroft NeuroRehab – Pediatric Services
Provides pediatric rehabilitation, physical therapy, occupational therapy, speech therapy, and specialized neurological services for children with Tuberous Sclerosis Complex.
Phone: 844-236-2267
Website: https://www.bancroft.org/neuro-rehab/pediatric-neuro-rehab/
The Therapy Group of Philadelphia
Provides physical therapy, occupational therapy, speech therapy, and early intervention services for children with Tuberous Sclerosis Complex.
Phone: 215-563-2000
Website: https://www.therapygroupphilly.com/
Community Health and Dental Care (CHDC) – Pediatric Services
Provides developmental screenings, pediatric therapy, and supportive healthcare services for children with Tuberous Sclerosis Complex.
Phone: 215-238-5100
Website: https://www.chdc.org/
Jewish Family and Children’s Service of Greater Philadelphia – Developmental Support
Provides counseling, developmental support, family services, and behavioral health resources for children with Tuberous Sclerosis Complex.
Phone: 215-576-0800
Website: https://www.jfcspgh.org/developmental-support/
NeuroBehavioral Associates
Provides neuropsychological evaluations, behavioral assessments, and therapy services for individuals with Tuberous Sclerosis Complex.
Phone: 301-986-1900
Website: https://www.neurobehavioral.com/
Abington Pediatric Therapy
Provides occupational therapy, physical therapy, speech therapy, and early intervention services for children with Tuberous Sclerosis Complex.
Phone: 215-887-4500
Website: https://www.abingtonhealth.org/pediatric-therapy
Children’s Integrated Center for Success (CICS)
Provides comprehensive developmental evaluations, therapy, behavioral health services, and multidisciplinary support for children with Tuberous Sclerosis Complex.
Phone: 215-707-0300
Website: https://www.templehealth.org/locations/childrens-integrated-center-for-success
Devereux Advanced Behavioral Health Pennsylvania
Provides behavioral therapy, evaluations, family support, and specialized services for individuals with Tuberous Sclerosis Complex.
Phone: 610-954-9600
Website: https://www.devereux.org/site/SPageServer/?pagename=pa_adult_services
Gaudenzia – TSC Support Services
Provides counseling, behavioral health services, and supportive care for individuals with Tuberous Sclerosis Complex and their families.
Phone: 215-386-2600
Website: https://www.gaudenzia.org/
Holcomb Behavioral Health Systems
Provides counseling, behavioral health treatment, and supportive services for individuals with Tuberous Sclerosis Complex.
Phone: 800-889-3931
Website: https://www.holcombbehavioralhealth.org/
Mazzitti & Sullivan EAP – TSC Counseling
Provides counseling and behavioral health support for individuals with Tuberous Sclerosis Complex and their families.
Phone: 800-458-4357
Website: https://www.mazzittisullivan.com/
Pennsylvania Psychological Association – TSC Resources
Provides a directory of psychologists and behavioral health resources for individuals with Tuberous Sclerosis Complex throughout Pennsylvania.
Website: https://www.papsy.org/
Philadelphia Autism Project – TSC Resources
Provides educational resources, training opportunities, and support services for individuals with Tuberous Sclerosis Complex and related developmental disabilities.
Website: https://www.philadelphiaautismproject.org/
Resources for Human Development (RHD) – TSC Services
Provides counseling, behavioral health services, community supports, and family services for individuals with Tuberous Sclerosis Complex.
Phone: 215-735-1500
Website: https://www.rhd.org/
Tuberous Sclerosis Alliance (TS Alliance) – Community Support Network
Provides a directory of local support groups, family resources, peer connections, and advocacy services for individuals and families affected by Tuberous Sclerosis Complex (TSC).
Website: https://www.tscalliance.org/find-support/community-support-network/
Tuberous Sclerosis Alliance (TS Alliance) – TSC Clinics
Provides a nationwide directory of specialized Tuberous Sclerosis Complex clinics, including programs in Pennsylvania.
Website: https://www.tscalliance.org/find-support/tsc-clinics/
Access Services – Montgomery County
Provides community-based supports, advocacy, behavioral health services, and resources for individuals with Tuberous Sclerosis Complex and other developmental disabilities.
Phone: 800-589-6434
Website: https://www.accessservices.org/where-we-serve/montgomery-county-pa/
The Arc of Montgomery County
Provides advocacy, family support, community resources, and referrals for individuals with Tuberous Sclerosis Complex and other developmental disabilities.
Phone: 215-646-3500
Website: https://www.montgomerycountypa.gov/1217/Developmental-Disabilities
Delaware County Memorial Hospital – Community Resources
Provides information, referrals, and connections to community resources and developmental disability services for families in the Philadelphia region.
Phone: 610-359-2200
Website: https://decmc.org/community-resources/
North Penn School District – Special Education Resources
Provides disability-specific resources, parent information, and educational supports for families of children with Tuberous Sclerosis Complex and other developmental disabilities.
Website: https://www.npenn.org/central_office/special_education_department/parent_and_family_resources/local_and_national_disability_specific_org
Parent to Parent of Pennsylvania
Provides one-to-one peer mentoring, family support, educational resources, and connections for families of children with Tuberous Sclerosis Complex and other developmental disabilities.
Phone: 800-986-4550
Website: https://www.parenttoparent.org/
Pathway School
Provides specialized educational programming, social skills development, and transition services for children and adolescents with Tuberous Sclerosis Complex and other developmental disabilities.
Phone: 610-277-0660
Website: https://www.pathwayschool.org/
Camphill Village Kimberton Hills
Provides residential, vocational, day, and community support programs for individuals with Tuberous Sclerosis Complex and other developmental disabilities.
Phone: 610-935-0338
Website: https://www.camphillkimberton.org/
Developmental Synaptopathies Consortium (DSC) – Resources for Patients and Families
Provides educational resources, research updates, and support information for individuals and families affected by Tuberous Sclerosis Complex and other rare neurodevelopmental disorders.
Website: https://dsc.rarediseasesnetwork.org/resources/patients-and-families
Epilepsy Foundation of Minnesota – TSC and Epilepsy Resources
Provides educational resources and information for families managing epilepsy associated with Tuberous Sclerosis Complex.
Website: https://www.epilepsyfoundationmn.org/2025/09/24/what-parents-should-know-about-epilepsy-and-tuberous-sclerosis-complex-tsc/
Children’s Hospital of Pittsburgh – Tuberous Sclerosis Program
Provides information on specialized medical care, treatment options, research, and resources for individuals with Tuberous Sclerosis Complex.
Phone: 412-692-5437
Website: https://childrens.uvahealth.com/conditions/pediatric-tuberous-sclerosis
Tuberous Sclerosis Alliance (TS Alliance) – Resources
Provides a comprehensive collection of educational materials, treatment information, advocacy resources, family support, and community services for individuals affected by Tuberous Sclerosis Complex.
Website: https://www.tscalliance.org/find-support/
Tuberous Sclerosis Alliance (TS Alliance) – Clinic Resources
Provides information about specialized Tuberous Sclerosis Complex clinics, including the Children’s Hospital of Philadelphia Tuberous Sclerosis Clinic.
Website: https://www.tscalliance.org/find-support/tsc-clinics/
Montgomery County Developmental Disabilities Services
Provides information on accessing developmental disability services, early intervention, supports coordination, and community-based programs for individuals with Tuberous Sclerosis Complex in Montgomery County.
Website: https://www.montgomerycountypa.gov/1217/Developmental-Disabilities
Tuberous Sclerosis Complex Research Program (TSCRP)
Provides research updates, clinical trial information, educational materials, and advocacy resources for individuals with Tuberous Sclerosis Complex and their families.
Website: https://www.tscalliance.org/research/clinical-trials
Developmental Disability Family Support Organizations
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I am a Superhero Expert
This memoir by Josh Stehle is a well-written account of his experience growing up with his autistic older brother. It’s often funny, insightful, and highlights the positive brotherly connection that they share. It’s a quick must-read for autism parents and siblings.
